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A process and impact evaluation of use of a Powered Wheelchair Standing Device by boys with Duchenne muscular dystrophy

Graham Jenny Peter Hall Downs Jacoby BAppSci PhD CRFS FANZSRS FThorSoc FERS BApplSci (physio) MSc PhD BA (Hons) MSc Honorary Research Associate Head,

Educational Outcomes of Children in Contact with the Child Protection System: A Longitudinal Population Study

Melissa Fiona Helen O'Donnell Stanley Leonard BPsych (Hons), MPsych, GradDip Ed, PhD FAA FASSA MSc MD FFPHM FAFPHM FRACP FRANZCOG HonDSc HonDUniv

Huge hospital burden for kids with intellectual disabilities

New research from the Telethon Institute has shown that children with an intellectual disability are up to 10x more likely to be admitted to hospital.

MECP2 duplication syndrome (MDBase)

MECP2 duplication syndrome is a rare disorder neurodevelopmental disorder that, unlike Rett syndrome, mostly affects boys.

National Grants for Innovative Child Health Research

Perth's Telethon Institute for Child Health Research has been awarded more than 3 million dollars from the National Health and Medical Research Council (NHMRC)

Fearless Mikayla: Why we research Down syndrome

Eight-year-old Mikayla is the miracle child her parents never thought they would have. They’d tried for seven years to have a baby, and when Mikayla was finally born they couldn’t contain their excitement or pride. The fact she had Down syndrome was secondary.

Publications

The list of The Siblings Project publications

The Kids researchers who helped identify rare disorder now poised to help the hunt for treatment

Two The Kids Research Institute Australia researchers recognised for their role in building a global database for CDKL5 deficiency disorder are now helping to set the scene for clinical trials of much-needed potential treatments.

Association of gestational age and growth measures at birth with infection-related admissions to hospital throughout childhood

Children who were born with reduced gestational age, birthweight, and birth length have persistently increased rates of infection-related admissions to hospital until age 18 years

The Youth Safe Haven Café Project

The Youth Safe Haven Project will co-design a youth-specific Safe Haven Café within the Peel Health Hub to serve as an alternative to the emergency department for young people at risk of suicide.