Individuals with Rett syndrome (RTT) experience impaired gross motor skills, limiting their capacity to engage in physical activities and participati…
The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developm…
The Sibling Project focuses on children, adolescents and emerging adults who have a sibling with a disability, investigating their mental health, rel…
The U-PART intervention was found to be feasible and effective in the short term in girls and women with Rett Syndrome
Our findings suggest that some opportunities do exist for clinicians to help optimise parental well-being
This study explored facilitators and barriers to "uptime" (non-sedentary) activities in Danish girls and women with Rett syndrome
High levels of sedentary time and low daily step counts in a Danish population of females with Rett syndrome
Social advantage may provide some protection for dental health in individuals with Rett syndrome
Rett syndrome is associated with increased vulnerability to lower respiratory tract infection requiring hospitalization
Gastrostomy placement was associated with improvement in BMI in females with Rett syndrome, but its long-term impact on individuals and their familie…