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How to get active

Considering one’s own capacity, activity should be included into everyone’s daily routine to make sure these recommended levels of activity are being as closely met as possible, for everyone to secure the most benefits.

How much activity is recommended?

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.

Research on activity in Rett syndrome

Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.

Caring for caregivers

When you build routines into your day to increase uptime, it doesn’t only affect the person with Rett syndrome; it affects the whole family.

ActiveRett

Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.

Meeting with families in China

Prof Helen Leonard and Dr Jenny Downs recently visited Shenzhen, China to meet Chinese families and child neurologists from the Shenzhen Children's Hospital.

MECP2 duplication syndrome (MDBase)

MECP2 duplication syndrome is a rare disorder neurodevelopmental disorder that, unlike Rett syndrome, mostly affects boys.

Family resources

Rett Syndrome Association of Australia and ANZACRett are two family-oriented organisations.

Search our databases

Our Searchable online database allows you to create graphs like the one below.

AussieRett

The Australian Rett Syndrome Study is based at The Kids Research Institute Australia located in Subiaco, Western Australia. This study was established in 1993.