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Australian children living with rare diseases: health service use and barriers to accessing care

Children with rare diseases experience challenges at home and school and frequently require multi-disciplinary healthcare. We aimed to determine health service utilization by Australian children with rare diseases and barriers to accessing healthcare.

Citation:
Teutsch S, Zurynski Y, Eslick GD, ……. Leonard H, Dalkeith T, et al. Australian children living with rare diseases: health service use and barriers to accessing care. World J Pediatr. 2023

Keywords:
Access; Health functioning; Health service use; Rare diseases

Abstract:
Children with rare diseases experience challenges at home and school and frequently require multi-disciplinary healthcare. We aimed to determine health service utilization by Australian children with rare diseases and barriers to accessing healthcare.