Longitudinal observational research study: establishing the Australasian Congenital Cytomegalovirus Register (ACMVR)

Congenital cytomegalovirus (cCMV) is an important cause of long-term childhood disability. In Australia, the identification and treatment practices and the long-term clinical and neurodevelopmental outcomes of children with cCMV are unknown.

Citation:
Chandrasekaran P, Bowen A, Jones CA, Sung V, Clark JE, Britton PN, Palasanthiran P, Waight E, Gillespie AN, Sheedy HS. Longitudinal observational research study: establishing the Australasian Congenital Cytomegalovirus Register (ACMVR). BMJ Open. 2025;15(6).

Keywords:
Neonatology; Paediatric infectious disease & immunisation; registries; virology

Abstract:
Congenital cytomegalovirus (cCMV) is an important cause of long-term childhood disability. In Australia, the identification and treatment practices and the long-term clinical and neurodevelopmental outcomes of children with cCMV are unknown.