Data Collection and Harmonization in Preterm Respiratory Research: Recommendations and Insights From PELICAN

Citation:
Moore HL, Stanojevic S, Gibbons JTD, Bates A, Doyle LW, Garland N, Hemy N, Hurst JR, ……. Shackleton C, Um Bergström P, ……. Simpson SJ. Data Collection and Harmonization in Preterm Respiratory Research: Recommendations and Insights From PELICAN. Pediatr Pulmonol. 2026;61(9).

Keywords:
Bronchopulmonary dysplasia; core data collection; harmonization; lung function; prematurity‐associated lung disease

Abstract:
Individuals born preterm (before 37 weeks' gestation) have an increased risk of developing lung disease compared with those born at term. However, life-long lung function trajectories and the factors influencing them remain insufficiently understood in this population, reflecting an unfortunate scarcity of data, substantial heterogeneity in findings, and variability across centers.