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News & Events
Youth Health reportResearch for the Commissioner for Children & Young People seeking the views of >1,000 young people about their experiences accessing/using health services
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Ependymoma Awareness DayEthan was not even two when he was diagnosed with a rare type of brain tumour known as an ependymoma.
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Healthy lungs, healthy lifeThe lungs are one of the last organs in the body to develop as a baby grows. They're also one of the most important.

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Fiona Stanley: Honorary Life MembershipWe are honoured to bestow upon Fiona an Honorary Life Membership of this Institute as a reflection of our great respect, love and thanks.
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Every Friday: Child Health Research Seminars 2014Join our Friday Child Health Research Seminars in 2014 to explore the latest advancements in child health and connect with leading experts.
We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.

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HBF Run for a Reason 2014On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.

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"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndromeYou can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.

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The Rett Syndrome Journey: Pathways to FollowOur InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.