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News & Events

Consumer engagement jewel recognised for changing the conversation on health research

Pioneering health consumer advocate Anne McKenzie AM has been awarded the National Health and Medical Research Council’s prestigious Consumer Engagement Award in recognition of an almost 30-year career.

News & Events

Youth mental health survey during COVID lockdown supports calls for “blended” services

A state-wide survey conducted by The Kids Research Institute Australia researchers has found there are significant benefits to offering youth mental health treatment via telehealth services.

News & Events

Helping WA kids through the state’s snap lockdown

WA’s sudden lockdown has come as a shock to most of us. The Kids Research Institute Australia researcher and psychologist Dr Monique Robinson says parents should keep a close eye on their children who may be feeling anxious or disappointed as a result.

News & Events

Minderoo Foundation funds vaccine trial to protect WA healthcare workers from COVID-19

At least 2,000 WA healthcare workers will help test whether an existing tuberculosis vaccine can reduce their chance of COVID-19 infection, lessen the severity of symptoms and boost immunity.

Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome

This study explored relationships between speech and language abilities in girls with Rett syndrome and how they may be affected by the type of genetic mutation

Gastrointestinal dysmotility in Rett syndrome

We reviewed literature and RettNet to explore firsthand perspectives of gastrointestinal issues in Rett Syndrome, then developed recommendations with experts.

Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.

Longitudinal bone mineral content and density in Rett syndrome and their contributing factors

This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.

Using a large international sample to investigate epilepsy in Rett syndrome

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.