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The internet is emerging as a valuable tool for scientists to gather data for critical research into rare diseases.
In this blog, Speech Pathology Clinical Lead Aria May looks at telehealth and how it can support children and families with their therapy goals.
Funding from the Stan Perron Charitable Foundation will support world class researchers at The Kids Research Institute Australia to improve the health and wellbeing of WA children facing serious health challenges.
Child health experts are concerned by a significant increase in the number of Australian children requiring learning support at school.
Listening to children and families about what is important to them when visiting Child Development Services (CDS) can provide valuable insights.
Peter Shelley Jacoby Gorman BA (Hons) MSc BSc (Hons) PhD Biostatistician Honorary Research Associate Peter.Jacoby@thekids.org.au shelley.gorman@
Meet Toby - he has developmental coordination disorder (DCD), a neurodevelopmental condition that causes delays and impairments in fine and gross motor skills.
A diet and lifestyle mobile app targeting a critical window in early pregnancy is being introduced to women in the northern suburbs of Perth, hoping to assist with breaking the ‘transmission’ of obesity from one generation to the next.
This study explored the lived experience of university students with attention-deficit hyperactivity disorder (ADHD) and identified factors that help or hinder their capacity for self-compassion in higher education. Fourteen university students with ADHD aged 18–25 participated in individual semi-structured interviews exploring experiences of self-compassion in academic contexts.
In children with Rett syndrome, this study aimed to (1) describe gross motor skill trajectories; and (2) analyse the influences of genetic variant and comorbidities. This was a prospective longitudinal study conducted at the Danish National Center for Rett Syndrome 2008 to 2022. The Rett Syndrome Gross Motor Scale (RSGMS) was administered, and clinical data collected at each visit.