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Our People

Learn more about our people - the dedicated researchers and staff working to address Rett syndrome, CDKL5 and other related disorders.

Consumer reference group

The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.

HBF Run for a Reason 2013

What a fabulous day we had on Sunday at the HBF Run for a Reason in Perth, where Rett syndrome was extremely well represented!

Respiratory Infection Rates Differ Between Geographically Distant Paediatric Cystic Fibrosis Cohorts.

Respiratory infection rates differ between geographically distant paediatric cystic fibrosis cohorts ABSTRACT Respiratory infections are a major