This paper aimed to describe the relationships between level of impairment and participation in community activities for girls and women with Rett sy…
In this paper, the issue of people with profound intellectual and multiple disabilities facing significant challenges to participating in their commu…
This study aimed to describe overall survival and adult health in those with Rett syndrome.
Families participating in the population-based and longitudinal Australian Rett Syndrome Database whose daughter had undergone spinal fusion provided…
Through evidence review and the consensus of an expert panel, we developed recommendations for the clinical management of gastroesophageal reflux dis…
The aim of this study was to describe pubertal development in a population-based cohort of females with Rett syndrome.
We developed recommendations for the clinical management of poor growth and weight gain in Rett syndrome through evidence review and the consensus of…
Hand function is particularly affected and we discuss theoretical and practical perspectives for optimising hand function in Rett syndrome.
Participation for girls and women with Rett syndrome could be enhanced by stronger local community supports.
The transition from school to adulthood for young adults with an intellectual disability involves movement from a generally secure and supported scho…