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People living with rare diseases had a high risk of negative health outcomes due to COVID-19. Pandemic preparedness will ensure best practice procedures and optimal outcomes during future pandemic events. This paper sought to understand the needs of children with rare diseases during the COVID-19 pandemic to inform preparation for future pandemic and disaster events. First, impacts and outcomes from the COVID-19 pandemic on people living with rare disease were identified in the literature.
Substantial progress in adolescent health research has been made over recent decades, but important knowledge gaps remain.
This chapter outlines the concept of ‘justice capital’. It commences with a discussion of the impacts of colonization on Indigenous people in Australia, with a particular focus on Indigenous children placed in state care systems.
The Aboriginal Health and Wellbeing Team follows an holistic definition of Aboriginal Health which means that health is not just the physical wellbeing of an individual but includes the social, emotional and cultural wellbeing of the whole community.
The fifth Big Elders meeting/gathering was held on the Wednesday, 28th of February 2024 at Burswood on Swan.
This research project was part of the broader Ngulluk Koolunga Ngulluk Koort (Our Children, Our Heart) five-year (2016 to 2020) project.
The third Big Elders meeting/gathering was held on the 26th of February 2019 at Burswood on Swan.
Director of First Nations Strategy and Leadership; Head, First Nations Health and Equity Research
Honorary Research Associate
Carrington Fiona Shepherd Stanley PhD FAA FASSA MSc MD FFPHM FAFPHM FRACP FRANZCOG HonDSc HonDUniv HonFRACGP HonMD HonFRCPCH HonLLB (honoris causa)