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Community Priority setting for Fetal Alcohol Spectrum Disorder Research in AustraliaIntroduction Fetal Alcohol Spectrum Disorder (FASD) is a neurodevelopmental disorder caused by prenatal alcohol exposure (PAE). FASD research is a rapidly growing field that crosses multiple disciplines. To ensure research is relevant and meaningful for people living with FASD, their families, and the broader public there is a need to engage community members in setting priorities for research.
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Navigating complexity to support justice-involved youth with FASD and other neurodevelopmental disabilities: needs and challenges of a regional workforceYoung people with Fetal Alcohol Spectrum Disorder (FASD) can face significant challenges in their lives, including overrepresentation in the justice system from a young age. Police questioning and court proceedings can be difficult for these young people to navigate. Practice and policy responses are necessary to identify these individuals, provide appropriate support/rehabilitation, and upskill the justice workforce. The aim of this research was to determine the unmet workforce development needs of a regional workforce providing care and support to youth involved with the justice system.
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Exploring offending characteristics of young people with foetal alcohol spectrum disorder in Western AustraliaNeurodevelopmental impairments resulting from Foetal Alcohol Spectrum Disorder (FASD) can increase the likelihood of justice system involvement. This study compared offence characteristics in young people with FASD to demographically matched controls (n = 500) in Western Australia.
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FASD Hub AustraliaCarol Bower MBBS MSc PhD FAFPHM DLSHTM FPHA Honorary Emeritus Fellow 08 6319 1813 carol.bower@thekids.org.au Senior Principal Research Fellow;
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Using participatory design to create impactful health promotion messages regarding alcohol use in pregnancyInvestigators: Tess Fletcher The overarching aim of this proposed research is to explore the limitations of existing alcohol and pregnancy messages
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Talking, Hearing, Understanding, Knowing: A qualitative exploration of the experiences of justice-involved youth undergoing assessment for Fetal Alcohol Spectrum Disorder in a juvenile detention centreCarol Melissa Bower O'Donnell MBBS MSc PhD FAFPHM DLSHTM FPHA BPsych (Hons), MPsych, GradDip Ed, PhD Honorary Emeritus Fellow Honorary Research
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A Comparison of the Motor Skills of Young People in a Youth Detention Centre with Diagnosed Fetal Alcohol Spectrum Disorder and Prenatal Alcohol ExposureVisual motor integration and handwriting skills were often impaired in this population of young people in a youth detention centre
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The impact of having a sibling with an intellectual disability:parental perspectives in two disordersThis study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.
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Independent effects of socioeconomic status and place of residence on the incidence of type 1 diabetes in Western AustraliaTo analyze the incidence of type 1 diabetes in 0- to 14-year olds in Western Australia, from 1985 to 2002, by region and socioeconomic status.
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Physical and mental health of mothers caring for a child with Rett syndromeThis study compared the behavior profile of cases in the Australian Rett Syndrome Database (ARSD) with those in a British study using the Rett Syndrome...