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The aim of this study was to identify and prioritise the ten most important unanswered themes in rare disease research in Australia by integrating perspectives of key stakeholders, including people living with rare disease, parents/carers, health professionals, and rare disease community advocates.
Understanding how families engage with screen technologies and how it may influence child development
with Dr Anna Boggiss
Research Assistant - Peter Delaney
Dr Jeffrey Cannon is a Health Economist at The Kids Research Institute Australia. Jeff completed his PhD in health economics at the University of Western Australia. His work in health and medical research spans across maternal and newborn health, infectious diseases and more recently, childhood onset diabetes.
Virtual Scientific Launch Day: Wednesday 1 December 2021 (Australia) Time: 7am Australian WST/ 10am Australian EDST / 12pm NZ DST North America:
Parents of young children with type 1 diabetes experience significantly better quality of life and reduced fear of hypoglycaemic episodes when given remote access to their child's continuous glucose monitoring, new Children's Diabetes Centre research has found.
Oliver Bowman is too young to understand the enormity of having type 1 diabetes but his young parents Brooke and Aidan know all too well the reality of having a child with a chronic disease.
Children with type 1 diabetes using an insulin pump have better glycaemic control than to those using multiple daily injections (MDI) of insulin, a new Children's Diabetes Centre study has found.
If your child/adolescent has been approved to use CGM but decides they do not want to use it, it is important to complete a NDSS change/termination form, which needs to be returned to your clinic team.