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The transition from school to adulthood for young adults with an intellectual disability involves movement from a generally secure and supported school...

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Head, Child Disability

Research

Helen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763

Research

Siblings of children with disabilities: challenges and opportunities

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Taylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

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Children with intellectual disabilities are more likely to experience sleep disorders of insomnia, excessive daytime sleepiness and sleep breathing disorders than typically developing children. The present study examined risk factors for these sleep disorders in 447 children (aged 5-18 years), diagnosed with an intellectual disability and comorbid autism spectrum disorder, cerebral palsy, Down syndrome or Rett syndrome. Primary caregivers reported on their child's sleep using the Sleep Disturbance Scale for Children (SDSC), as well as medical comorbidities and functional abilities.

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.

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This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.

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Overview of Health Issues in School-aged Children with Down Syndrome

Research

Helen Jenny Keely Leonard Downs Bebbington MBChB MPH BApplSci (physio) MSc PhD MClinPsych/PhD Principal Research Fellow Head, Child Disability