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Initial Validation and Reliability of the CDKL5 Deficiency Disorder Hand Function Scale (CDD-Hand)

Pathogenic variants in the CDKL5 gene result in CDKL5 deficiency disorder (CDD), which is characterized by early-onset epilepsy, severe developmental delay, and often, cortical visual impairment. Validated clinical outcome measures are needed for future clinical trials to be successful. This study aimed to adapt the Rett Syndrome Hand Function Scale for CDKL5 deficiency disorder and evaluate its feasibility, acceptability, content validity, and reliability.

Getting to grips with invasive group A streptococcal infection surveillance in Australia: are we experiencing an epidemic?

Asha Rosemary Jeffrey Bowen Wyber Cannon BA MBBS DCH FRACP PhD GAICD FAHMS OAM MBChB MPH FRACGP PhD BSc(Hons) BBus PhD Head, Healthy Skin and ARF

Malaria control a global effort

Global efforts led by The Kids Research Institute Australia’s Child Health Analytics program will see nations impacted by high rates of malaria empowered to develop their own controls and solutions.

Strategies to Improve Research Participation By Older People With Cognitive Impairment: A Systematic Review

Older people with cognitive impairment are unrepresented in clinical research. Our objective was to review evidence for strategies to support their research inclusion and participation.

Relational processes for transformative climate justice policymaking: insights from a Western Australian community of practice

This article explores how relational approaches to policymaking across multiple levels and sectors of society might enable transformative climate justice. It draws on a unique case study from the state of Western Australia, where climate justice is thwarted by the coloniality of climate politics and the hegemony of the fossil fuel industry.

Empathy, Perspective Taking and Prosocial Behaviour: The Importance of Parenting Practices

The current study analyzed the relationships among maternal empathy, parenting that encourages the child to take the perspective of others andcognitive empathy.

Emergency department overcrowding, mortality and the 4-hour rule in Western Australia

The objective of this study was to assess whether emergency department (ED) overcrowding was reduced after the introduction of the 4-hour rule in WA hospitals.

Research Assistant

Research Assistant required to provide research support to senior researchers in Adelaide team with a focus on translating research to policy and practice.

Sara Pasic

Project Coordinator

Face-to-face clinics set to resume

With COVID-19 currently under control in WA, Perth Children's Hospital's diabetes Service is beginning to plan for a return to best practice face-to-face care in clinics in the coming months.