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IDEA (Intellectual Disability Exploring Answers) Database

IDEA is one of the few population-based resources in the world dedicated to intellectual disability. The IDEA database contains information on all children born in Western Australia since 1983 who have been identified with having an intellectual disability. Individuals with autism spectrum disorder, both with and without intellectual disability, are also included in the database. Deidentified information is accessed from the Department of Communities WA, the WA Department of Education, and the National Disability Insurance Agency (NDIA) to create the database. IDEA can be linked to other datasets to facilitate research into the determinants, outcomes and service needs of children and adults with intellectual disability. Researchers can apply for such linked data, available in a de-identified format under approval from an ethics committee.

Sarah

  Sarah Mum of two, Summer and Andre Jnr. Project community member.           Having lived in a remote Aboriginal community, Looma, for many years it

Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990-2010: A systematic analysis

Measuring disease and injury burden in populations requires a composite metric that captures both premature mortality and the prevalence and severity of...

Onwards and upwards

Making FASD History inspires the rest of the world to follow suit.

The ORIGINS Project: A platform for research discovery

The ORIGINS Project is a decade-long longitudinal study of more than 18,000 individuals including mothers, partners and children, as part of a collaboration between The Kids Research Institute Australia and Joondalup Health Campus.

Perspectives on the essential skills of healthcare decision making in children and adolescents with intellectual disability

Involvement in healthcare decisions is associated with better health outcomes for patients. For children and adolescents with intellectual disability, parents and healthcare professionals need to balance listening to a child's wishes with the responsibility of keeping them safe. 

The Kids Research Institute Australia and Curtin University researchers among world’s most influential in their field

Two researchers working across The Kids Research Institute Australia and Curtin University have been named among the world’s most highly cited scientists.

Sugary drinks in the spotlight

At The Kids, many of our studies have uncovered significant health risks associated with both high sugar drinks and energy drinks.

New approach needed to tackle child abuse and neglect

Leading child advocates have called for a new approach to tackling child abuse and neglect amid rising rates of abuse notifications

Screen ORIGINS study finds mobile devices a lifeline for families during lockdowns

A study of ORIGINS families has revealed a positive aspect to the COVID pandemic, with families found to benefit from the extra time together during lockdowns and mobile devices proving useful for helping them stay in touch with extended family and friends and for activities such as online classes.