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Showing results for "aboriginal respiratory"

Predictors of scoliosis in Rett syndrome

Scoliosis is a common clinical manifestation of Rett syndrome, a neurodevelopmental disorder that almost exclusively affects girls.

Stan Perron Charitable Foundation grants back ambitious research projects

Eleven researchers from The Kids Research Institute Australia will benefit from the latest round of Stan Perron Charitable Foundation Research Fellowship and Platform grants, with two researchers receiving prestigious Perron Platform grants and a further ten awarded Research Fellowships.

The Kids Research Institute Australia leads national review on consumer involvement in health research

The Kids Research Institute Australia has been awarded a prestigious National Health and Medical Research Council (NHMRC) tender to lead the national review of the revised Draft Statement on Consumer and Community Involvement in Health and Medical Research.

Pitch perfect projects powered by philanthropy

Earlier this week ten emerging researchers took to the stage to pitch their projects to a room full of excited and engaged philanthropists who share our vision of happy, healthy kids.

Mental health champion a ‘brilliant woman’

Congratulations to Head of Youth Mental Health at The Kids Research Institute Australia, Dr Yael Perry, who has received a Telstra Health 2023 Brilliant Women in Digital Health Award in recognition of her innovative use of technology to achieve positive mental health outcomes for marginalised young people.

Telethon supports vital child health research projects

The generous support of West Australians through Channel 7’s Telethon Trust will help support crucial child health research at The Kids Research Institute Australia in 2022.

Breakthrough in antibiotic discovery opens Pandora's Box

Although a staple of modern medicine, the benefits of antibiotics are waning thanks to overuse and the increasing ability of bacteria to dodge them – known as antimicrobial resistance (AMR).

Caregiver-reported quality of life in individuals with developmental and epileptic encephalopathy and other severe neurodevelopmental encephalopathies

Information on factors contributing to quality of life (QOL) informs meaningful patient-centred care. We evaluated factors influencing QOL in individuals with developmental and epileptic encephalopathy (DEE) and other severe neurodevelopmental encephalopathy conditions using hypothesis-free regression tree analysis.

Transforming families: evaluation of a digital resource to enhance parental support for trans children

Parental support is a critical protective factor for trans and gender diverse children, yet many parents lack access to trustworthy, evidence-based information. The Transforming Families project aimed to address this gap by co-designing a digital resource to enhance parental understanding, support, and acceptance.

Psychometric validation of the quality of life Inventory − Disability (QI-Disability) among patients with Lennox-Gastaut syndrome and Dravet syndrome

To evaluate the psychometric properties of the Quality of Life Inventory -Disability (QI-Disability) for individuals with Dravet syndrome (DS) or Lennox-Gastaut syndrome (LGS), two rare developmental and epileptic encephalopathy conditions.