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Septo-optic dysplasia (SOD) is a congenital disorder affecting 1 in 10,000 births, defined by the presence of at least two of a clinical triad, consisting of optic nerve hypoplasia, midline brain defects and pituitary hormone deficiency. Children with SOD may have vision impairment, hormonal deficiencies, developmental disorders, or epilepsy, but the clinical picture is highly variable. The complexity of SOD, its interplay with family factors, and the need for multiple specialty commitments can make the diagnosis period a challenging time for families.
Children with complex needs and severe disability may undergo gastrostomy insertion to support feeding difficulties. Parent education programs are critical components of clinical care pathways but there is little information on parent-reported educational needs. This study describes the collaborative process that yielded a resource to assist parents considering gastrostomy tube placement for their children, and the evaluation of the resource.
AuStralian Collaboration to Enhance Neuro-Development
A unique national study to examine the impact of the Federal Government’s social media ban on families is being undertaken by The Kids Research Institute Australia, in collaboration The University of Western Australia and Edith Cowan University.
Melissa Helen O'Donnell Leonard BPsych (Hons), MPsych, GradDip Ed, PhD MBChB MPH Honorary Research Associate Principal Research Fellow +61 419 956
Innovative new digital platform set to transform diabetes care for WA families.
The Health Promotion and Education Research Program, led by Head Professor Donna Cross, combines over 14+ years of cyber safety research, involving over 30 projects investigating young people’s online behaviours, totalling over $5 million in funding since 2007.
This research focuses on understanding how maternal health, lifestyle, and fertility influence pregnancy outcomes and the early development of children.
Although a staple of modern medicine, the benefits of antibiotics are waning thanks to overuse and the increasing ability of bacteria to dodge them – known as antimicrobial resistance (AMR).
Australian infants who received whole-cell pertussis vaccines were less likely to be diagnosed with food allergy in childhood