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Showing results for "mental health aboriginal"

Community participation for girls and women living with Rett syndrome

This paper aimed to describe the relationships between level of impairment and participation in community activities for girls and women with Rett syndrome.

Who are our exercise researchers and what do they do?

A new ongoing Q & A series focusing on different research themes within the Children’s Diabetes Centre - focus: exercise team.

How you can help your child adapt to home schooling

Many children have transitioned to home schooling as a result of the COVID-19 pandemic – bringing about a big change in routine for kids and the entire family.

Exploring quality of life in individuals with a severe developmental and epileptic encephalopathy, CDKL5 Deficiency Disorder

CDKL5 Deficiency Disorder (CDD) is a rare genetic disorder caused by a mutation in the cyclin-dependent kinase-like 5 (CDKL5) gene. It is now considered to be a developmental and epileptic encephalopathy because of the early onset of seizures in association with severe global delay. Other features include cortical visual impairment, sleep and gastro-intestinal problems. Progress in clinical understanding, especially regarding the spectrum of functional ability, seizure patterns, and other comorbidities was initially slow but accelerated in 2012 with the establishment of the International CDKL5 Database (ICDD). Our aim was to use this data source to investigate quality of life (QOL) and associated factors in this disorder.

Environmental enrichment intervention for Rett syndrome: an individually randomised stepped wedge trial

Helen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763

Coordinator, Pilbara FASD Prevention Project

Coordinator, Pilbara FASD Prevention Project

Autism research conference

The CliniKids research team had a busy few days at the annual International Society for Autism Research (INSAR) conference held in Melbourne recently.

Bacterial Respiratory Infectious Disease Group (BRIDG)

The Bacterial Respiratory Infectious Disease Group (BRIDG) has a major focus ear and lung disease involving Streptococcus pneumoniae and Haemophilus influenzae.

Footprints in Time: the Longitudinal Study of Indigenous Children

This report and series of fact sheets explore findings from Waves 11 and 12 of the Footprints in Time, the Longitudinal Study of Indigenous Children.