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We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.

The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.

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Rett syndrome is one of the 8,000 rare genetic diseases that collectively affect up to 10% of the population.

Anyone who engages in physical activity, regardless of how much they do, can achieve mental, physical and social health benefits, resulting in benefits to their quality of life.

Learn about the importance of routines in enhancing uptime for children with Rett Syndrome, nurturing their engagement and fostering meaningful activities.

Discover a comprehensive guide on equipment designed to empower physical activity in children with Rett Syndrome, promoting their well-being and development.

Participate in our CDKL5 research to help advance research outcomes in the CDKL5 research field by our children's health specialist researchers.

News & Events

What a fabulous day we had on Sunday at the HBF Run for a Reason in Perth, where Rett syndrome was extremely well represented!

News & Events

Following last year's World Rett Syndrome Congress held in New Orleans, the 3rd European Rett Syndrome Conference was held in the Netherlands over 3 days.