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We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.
This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.
Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.
We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.
Publications from 2016 dating back to 1993 of AussieRett researchers, showing the research work into Rett syndrome and related disorders.
Learn more about our people - the dedicated researchers and staff working to address Rett syndrome, CDKL5 and other related disorders.
We are looking for someone who can bring both technical (platform administration) skills and a vision (solution implementation/direction) to the table.
We are seeking a highly motivated, ambitious and skilled individual to be part of a young, energetic and interdisciplinary research team.