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In order to help doctors and families reduce the risk of fractures, we developed clinical guidelines for managing bone health in Rett syndrome.
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Our Searchable online database allows you to create graphs like the one below.
Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.
Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.
AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians
Research
Social Gradients in Indigenous HealthThe pattern of association between socioeconomic factors and health outcomes has primarily depicted better health for those who are higher in the social...
Research
Where were those rabbits? A new paradigm to determine cerebral lateralisation of visuospatial memory function in childrenIn the majority of people, functional differences are observed between the two cerebral hemispheres: language production is typically subserved by the left...
Research
Interaction between ERAP1 and HLA-B27 in ankylosing spondylitis implicates peptide handlingAnkylosing spondylitis is a common form of inflammatory arthritis predominantly affecting the spine and pelvis that occurs in approximately 5 out of 1,000 adult
Research
Air Trapping on Chest CT Is Associated with Worse Ventilation Distribution in Infants with Cystic FibrosisIn school-aged children with cystic fibrosis (CF) structural lung damage assessed using chest CT is associated with abnormal ventilation distribution.