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Home participation resource for children with disability and complex needsFor families with a child with disability, this involves many extra care duties especially if their child has high and complex needs.
News & Events
Researchers to focus on MS inflammation puzzleThe Kids Research Institute Australia researchers will seek to better understand the relationship between antibodies and inflammation in people with multiple sclerosis (MS), thanks to a generous grant from MS Research Australia.
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Feeding change helps keep kids with intellectual disability out of hospitalChildren with intellectual disability who underwent gastrostomy – a feeding tube placed into the stomach – had better overall health and fewer hospitalisations for all causes except acute respiratory illnesses, research led by The Kids Research Institute Australia has found.
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How the Australian bushfires can impact your family’s physical healthBushfires can have a considerable impact on our physical and mental health, with some symptoms lasting long after the blaze is extinguished. And our children are amongst the most vulnerable.
News & Events
Cancer researcher to use Forrest Fellowship to tackle high rates of relapse after sarcoma surgeryA The Kids Research Institute Australia researcher aiming to reduce the high rate of relapse in children after cancer surgery has won a prestigious post-doctoral fellowship from the Forrest Foundation.
These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.
Our Searchable online database allows you to create graphs like the one below.
Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.
Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.
AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians