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Showing results for "Childhood interstitial lung disease "
Review of the available dental literature on assessment and management of the oral manifestations of Rett syndrome
Mental health benefits of a pedometer-based exercise intervention for parents of children with cancer were identified.
This study aimed to validate measures of sedentary time in individuals with Rett syndrome.
Review of the clinical and biological progress over 50 years in Rett Syndrome
Independent review of the Let’s Read literacy support program in South Australia and how it fits within the mix of services in South Australia that support the development of children’s emergent literacy
Perspectives of parents are integral to the assessment of communication abilities and inform communication interventions for girls and women with Rett Syndrome
Information on factors contributing to quality of life (QOL) informs meaningful patient-centred care. We evaluated factors influencing QOL in individuals with developmental and epileptic encephalopathy (DEE) and other severe neurodevelopmental encephalopathy conditions using hypothesis-free regression tree analysis.
To evaluate the psychometric properties of the Quality of Life Inventory -Disability (QI-Disability) for individuals with Dravet syndrome (DS) or Lennox-Gastaut syndrome (LGS), two rare developmental and epileptic encephalopathy conditions.
Language development is critical for children's life chances. Promoting parent-child interactions is suggested as one mechanism to support language development in the early years. However, limited evidence exists for a causal effect of parent-child interactions on children's language development.
Rett syndrome (RTT) is a severe neurodevelopmental disorder affecting predominantly females and associated with variants in the MECP2 gene. Recent success in clinical trials have resulted in an expanded use of the Rett Syndrome Behaviour Questionnaire (RSBQ) for clinical and research purposes.