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30 years

In 2020, we celebrated our 30th birthday with those who matter most — the kids whose lives we’ve changed through the research we do.

CDKL5 Publications

Publications from 2017 dating back to 2004 of CDKL5 researchers.

Be involved

Join us! Get involved with The Kids through providing a donation, volunteering your time, participating in important research, or with a professional commitment to the institute.

WA Aboriginal Child Health Survey (WAACHS) Linked Data Study

This study is a partnership between researchers, the Aboriginal community and government to provide evidence for policy and practice addressing high priority health and wellbeing issues for Aboriginal children and families.

Impact for Tourette’s

Impact for Tourette’s is Australia’s first national project evaluating the unmet needs of people with Tourette syndrome and other tic conditions.

Cohort profile: The WAACHS Linked Data Study

Despite the volume of accumulating knowledge from prospective Aboriginal cohort studies, longitudinal data describing developmental trajectories in health and well-being is limited.

Toolkit of uptime strategies

Learn about a practical toolkit of strategies to maximize uptime for children with Rett Syndrome, promoting engagement and facilitating meaningful activities.

COVID-19 Resource Hub

While COVID-19 is new and frightening, these resources are designed to help families tackle the challenges this virus has created for us.