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Showing results for "Neuromuscular disorders "
Honorary Research Associate
Senior Research Officer Tanika Sgherza is on the Healing Kids, Healing Families team.
In October 2018, the Autism CRC released A National Guideline for the Assessment and Diagnosis of Autism Spectrum Disorders in Australia.
ORIGINS is the largest study of its kind in Australia, following 10,000 children, from their time in the womb, over a decade to improve child and adult health.
This article discusses the important issue of the need for a stable definition of intellectual disability in order to allow comparisons by place and over time such as in the monitoring of this population's health needs and utilization. The aim of the new Australian National Centre for Intellectual Disability Health, established in 2023, is to ensure that all Australian children and adults with intellectual disability receive high-quality healthcare that meets their needs.
To describe the infant and maternal characteristics of the Early Moves cohort and to assess representativeness to the general population, and to evaluate the implementation fidelity of an application-based collection of General Movement Assessment (GMA) videos at writhing and fidgety age.
To evaluate the associations between complex hip surgery and subsequent hospitalizations in children with intellectual disability, including a subset of children with cerebral palsy.
To compare quality of life (QOL) across diagnoses associated with intellectual disability, construct QOL profiles and evaluate membership by diagnostic group, function and comorbidities.
To investigate modifiable child and caregiver factors influencing community participation among children with Down syndrome.
The measurement of quality of life (QOL) in children with intellectual disability often relies upon proxy report via caregivers. The current study investigated whether caregiver psychological distress mediates or moderates the effects of impairment on their ratings of QOL in children with intellectual disability.