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Resourceful and creative methods are necessary to research rare disorders

Our investigation used the infrastructure of InterRett, established in 2002 with dual aims of encour- aging international collaboration and ascertaining the...

Youth mental health survey during COVID lockdown supports calls for “blended” services

A state-wide survey conducted by The Kids Research Institute Australia researchers has found there are significant benefits to offering youth mental health treatment via telehealth services.

My child is trans – how do I support them?

Raising a child in one gender and then having them identify as another at any stage in their life can be difficult for a parent to understand and is not always an easy shift for a parent to make.

Major funding for WA super science capacity

he new super science of bioinformatics has been given a $1.3 million boost with the launch of the The McCusker Charitable Foundation Bioinformatics Centre

Safe use of mobile phones with T1D

The advancement of technology to assist the daily routine of diabetes is extremely helpful. However, it is important to create clear boundaries in the use of technology. Our social work team have some great tips to set up healthy routines.

The CDKL5 Disorder

One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.

Driving change for children with disability

Today marks International Day of People with Disability (IDPwD), a United Nations initiative that encourages communities around the world to deepen their awareness, understanding and acceptance of people with disability.

Am I a good enough parent?

I spend a lot of time listening to parents and a lot of time analysing what they are thinking, how they are coping, how they behave and what they are doing.

Healthcare & Early Diagnosis

Exploring opportunities for early diagnosis and intervention and the impact this has on improving family healthcare.

Cutting nails – Steps to building independence

In this blog, Curtin University Occupational Therapy student Julia Than discusses how to make nail care an important part of a child's self-care routine.