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Psychosocial characteristics and predictors of health-care use in families of young children with cystic fibrosis in Western AustraliaThis study aimed to identify psychosocial predictors in cystic fibrosis that may inform intervention strategies.
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Decolonising Australian Psychology: Discourses, Strategies, and PracticeThis paper discusses the role of psychology in Australia and the negative impact that certain disciplinary theories and practices have had on Aboriginal and...
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The Human Phenotype Ontology: Semantic Unification of Common and Rare Disease.The Human Phenotype Ontology (HPO) is widely used in the rare disease community for differential diagnostics, phenotype-driven analysis...
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The gap in life expectancy from preventable physical illness in psychiatric patients in Western AustraliaDespite knowledge about excess mortality in people with mental illness, the gap in their life expectancy compared with the general population has widened...
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Multi-modality monitoring of cystic fibrosis lung disease: the role of chest computed tomographyStratification of monitoring protocols based on the risk profile of the patient can help us in the future to better care for people with Cystic Fibrosis.
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A psychometric examination of a modified eight-item version of the children's eating disorder examinationFurthermore, previous studies suggest that scores obtained from a simplified 8-item version of the ChEDE may be more reliable and useful for research...
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Single-cell transcriptomic and spatial landscapes of the developing human pancreasCurrent differentiation protocols have not been successful in reproducibly generating fully functional human beta cells in vitro, partly due to incomplete understanding of human pancreas development. Here, we present detailed transcriptomic analysis of the various cell types of the developing human pancreas, including their spatial gene patterns. We integrated single-cell RNA sequencing with spatial transcriptomics at multiple developmental time points and revealed distinct temporal-spatial gene cascades.
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Rare disease education in Europe and beyond: time to actPeople living with rare diseases (PLWRD) still face huge unmet needs, in part due to the fact that care systems are not sufficiently aligned with their needs and healthcare workforce (HWF) along their care pathways lacks competencies to efficiently tackle rare disease-specific challenges. Level of rare disease knowledge and awareness among the current and future HWF is insufficient.
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The impact of expanding access to early childhood education services in rural Indonesia.This article examines the relationship between preschool quality and children’s early development in a sample of over 7900 children enrolled in 578 preschools in rural Indonesia.
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Facilitating Empowerment and Self-Determination Through Participatory Action ResearchThis article details the application of the participatory action research approach by the National Empowerment Project, Aboriginal community-based researchers.