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Physical and mental health in mothers of children with Down syndrome.Physical and mental health in mothers of children with Down syndrome.
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Research
Predictors of scoliosis in Rett syndromeScoliosis is a common clinical manifestation of Rett syndrome, a neurodevelopmental disorder that almost exclusively affects girls.
Research
The perceived effects of cannabis products in the management of seizures in CDKL5 Deficiency DisorderCDKL5 Deficiency Disorder (CDD) is a severe treatment-resistant form of early-onset epilepsy. Current treatment options are often ineffective and associated with adverse effects, forcing families to seek alternative therapies for their children including products derived from cannabis. Reportsof miraculous cures and a public preferencefor 'natural' therapies have resulted in considerable public interest, and so this study aimed to characterize the use of cannabis in these individuals, as well as compare caregiver perceptions of efficacy and safety to objective evidence of seizure control and number of antiepileptic drugs used.
Research
Perspectives on hand function in girls and women with Rett syndromeHand function is particularly affected and we discuss theoretical and practical perspectives for optimising hand function in Rett syndrome.
Research
Barriers to diagnosis of a rare neurological disorder in China-Lived experiences of Rett syndrome familiesFourteen of 74 Chinese families known to the International Rett Syndrome Phenotype Database participated in this qualitative study.
CliniKids has two clinics - in Subiaco and also in Joondalup.
Research
The diagnostic odyssey to Rett syndrome: The experience of an Australian familyThe diagnosis of a rare disorder is dependent on the clinician's particular knowledge and experience, and can be challenging when the presentation is variable.
Research
Guidelines for management of scoliosis in Rett syndrome patients based on expert consensus and clinical evidenceTo develop guidelines for the clinical management of scoliosis in Rett syndrome through evidence review and consensus expert panel opinion.
Research
Parental experiences of scoliosis management in Rett syndromeScoliosis is the most common orthopaedic complication of Rett syndrome. Parents of affected individuals are vital partners in the clinical management...
Embrace @ The Kids Research Institute Australia is Western Australia’s first research collaboration devoted to the mental health of infants, children and young people ages 0-25.
Research
Sleep problems in Rett syndromeSleep problems are thought to occur commonly in Rett syndrome, but there has been little research on prevalence or natural history.
Stay up to date with the latest news and events from Embrace.
News & Events
Healing tree leaves mark on Rio Tinto staffThe foyer of Rio Tinto’s Perth Operations Centre recently hosted the Embrace healing tree in recognition of Mental Health Week.
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Scrolling for advice? TikTok tips a parent stitch upResearch from The Kids has revealed that approximately half of supposed 'educational' content for parents on TikTok is being uploaded by a creator without any expertise.
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Researchers present at national mental health conferenceThe Society for Mental Health Research conference was held in Sydney in early November, 2024.
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Building research capacity on parenting programProject Officer Lisa Kickett will be funded by Embrace @ The Kids Research Institute Australia to complete a placement on a major parenting program research project, paving the way for her to complete her Master of Social Work degree.
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Congratulations to the Embrace 2023 Research Award winnersEmbrace 2023 Research Award winners Zoe Waters and Pulan Bai.
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New research reveals TikTok's benefits to LGBTQIA+ communityNew research from Embrace @ The Kids Research Institute Australia's childhood trauma team Rigel Paciente and Alix Woolard reveals TikTok's benefits to LGBTQIA+ community