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Barriers to diagnosis of a rare neurological disorder in China-Lived experiences of Rett syndrome families

Fourteen of 74 Chinese families known to the International Rett Syndrome Phenotype Database participated in this qualitative study.

International comparisons of behavioral and emotional problems in preschool children: Parents' reports from 24 societies

International comparisons were conducted of preschool children's behavioral and emotional problems as reported on the Child Behavior Checklist for Ag…

Protocol For Study Of Information Needs Of Parents Of Infants Newly Diagnosed With Cystic Fibrosis

This study aimed to investigate the information needs, priorities, and information-seeking behaviours of parents of infants newly diagnosed with CF.

Socioemotional Development and its Correlates among 5-year-old Children in Peru and Brazil

This paper describes a teacher-completed measurement of child development status applied in seven communities in the state of São Paulo, Brazil, and…

Reducing all-cause mortality among patients with psychiatric disorders: a population-based study

We investigated whether compulsory community treatment, could reduce all-cause mortality among patients with psychiatric disorders.

Descriptive epidemiology of cleft lip and cleft palate in Western Australia

These data provide a picture of the prevalence of OFCs in WA since 1980, and provide a useful reference for OFC data in Australia and internationally.

Clarithromycin therapy for patients with Cystic Fibrosis: A randomized controlled trial

The clinically significant actions of oral azithromycin in modifying progressive cystic fibrosis (CF) lung disease have been well documented.

Improved long-term survival in patients on combination therapies following an incident acute myocardial infarction: A longitudinal population-based study

To investigate the single and combined effectiveness of commonly prescribed secondary preventive medications (post-acute myocardial infarction (AMI))…

Western Australian Epithelial Research Program

airways of Western Australian children and adults (1-50 years of age) undergoing non respiratory elective

Farewell Tarini

about helping children and young people with Type 1 Diabetes to exercise safely and strive to do this ... day-to-day challenges faced by families liv…