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We described the occurrence of scoliosis in Rett syndrome, how it develops and how it is influenced by the individual's age, mutation type, and walking ability.

Twenty-five families of girls who underwent a spinal fusion between 2006-2012 were interviewed to explore the course of their daughter's recovery.

Many girls and women with Rett syndrome experience seizures. We wanted to know if there were any factors that influenced the age when seizures first developed.

We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.

The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.

News & Events

On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.

News & Events

You can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.

News & Events

Our InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.

News & Events

At just two years old, Lucy lost her fight against flu. With your generous help, we can finally beat influenza.

The Imogen Miranda Suleski Fellowship is an annual award for early-career post-doctoral researchers at The Kids Research Institute Australia.