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Showing results for "Neuromuscular disorders "
Research
Comparing home polysomnography with transcutaneous CO2 monitoring to laboratory polysomnography in children with neuromuscular disordersClinical utility of home polysomnography in children with neuromuscular disorders is limited by lack of evidence that sleep-disordered breathing can be reliably identified and inability to diagnose hypoventilation because carbon dioxide is not measured.
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A fine balance and a shared learning journey: Exploring healthcare engagement through the experiences of youth with Neuromuscular DisordersExplored Youth with Neuromuscular Disorders perceptions of health, health behaviors and healthcare engagement
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Factors influencing participation in home, school, and community settings by children and adolescents with neuromuscular disorders: A qualitative descriptive studyThis study explored how children and adolescents with a neuromuscular disorder (NMD) and their parents experienced barriers and enablers to the child's participation.
The Kids Research Institute Australia is at the forefront of a global effort to track and prevent malaria – one of the world’s leading causes of disease and child deaths, particularly in developing countries.
Research
Comodity forecastingProject description This project support the development of 10-year global forecasts of nets, insecticides, diagnostics, and treatments for malaria
News & Events
International funding boost for global malaria researchThe Malaria Atlas Project (MAP) – which houses the world’s largest malaria database and is at the forefront of efforts to track and tackle the disease – has been awarded more than $16 million by the Bill & Melinda Gates Foundation.
Research
Malaria Atlas Project (MAP)The Malaria Atlas Project (MAP) aims to disseminate free, accurate and up-to-date geographical information on malaria and associated topics. Our mission is to generate new and innovative methods to map malaria, to produce a comprehensive range of maps and estimates that will support effective planning of malaria
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Endemic country capacity building and decentralizationAdam Punam Susan Tolu Saddler Amratia Rumisha Okitika PhD PhD PhD (Biostatistics) EMBA, GAICD, PMP, MPH, BSc Research Officer Honorary Research
News & Events
The Kids study hopes to help kids with neuromuscular disorders sleep more easilyMackenzie was 10 months old when her parents, Jodie and Scott, were given the life-changing news that their daughter would never walk.
Research
Developing clinical predictors of disease progression in children with neuromuscular disorders to prevent future respiratory failureGraham Hall BAppSci PhD CRFS FANZSRS FThorSoc FERS Honorary Research Associate Honorary Research Associate Professor Graham Hall is an
Research
Quality of Life and Psychosocial Well-Being in Youth With Neuromuscular Disorders Who Are Wheelchair Users: A Systematic ReviewTo investigate quality of life (QOL) and psychosocial well-being in youth with neuromuscular disorders (NMDs) who are wheelchair users.