This study describes the carer- and self-reported mealtime challenges for children and young people with cerebral palsy. These data are novel and inc…
Asparaginase is a critical component of modern multi-agent chemotherapy regimens for paediatric acute lymphoblastic leukaemia and lymphoblastic lymph…
The study aimed to evaluate the experiences of participants involved in co-production to develop a National Framework for assessing children's functi…
People with intellectual disability experience significant gaps in healthcare delivery resulting in poor health outcomes. Appropriately designed heal…
To characterize sleep profiles in individuals with neurogenetic disorders (NGDs) and examine the contribution of key clinical and psychiatric symptom…
Menstruation can be complex and challenging to manage, including for those with intellectual disability. People with intellectual disability experien…
Speech and language therapists' (SLT) practice with cultural and linguistic diverse (CALD) populations with acquired and congenital neurogenic commun…
Sibling profiles, including sibling status (only-child or sibling) and sibling characteristics (sibling size, birth order, and sex), can impact on li…
CDKL5 deficiency disorder (CDD) is a rare developmental and epileptic encephalopathy. Greater understanding of the smallest meaningful improvements f…
Many children and their families, especially those from priority populations, experience barriers to accessing high-quality early childhood health, e…