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Professor Fiona Wood AM

Director of the Burns Service of Western Australia (BSWA); Consultant Plastic Surgeon; Head, Paediatric Burn Care

People

Sam Wilkinson

Sam Wilkinson is a Research Clinician in the Youth Mental Health team at The Kids Research Institute Australia.

Assessment and management of nutrition and growth in Rett syndrome

We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.

Experience of gastrostomy using a quality care framework: The example of Rett syndrome

We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.

People

Bec Young

Rebecca 'Bec' Young is a research assistant on the Early Neurodevelopment and Mental Health team at The Kids Research Institute Australia.

Level of purposeful hand function as a marker of clinical severity in Rett syndrome

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

Parental experiences of scoliosis management

We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.

Wendy

  Wendy Mum of two kids, Joshua and Julia. ORIGINS project member and trial participant.          I discovered that my son was allergic to nuts.