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We aimed to review original research which described factors impacting the health of primary care-givers of children with Autism or Intellectual Disability
Synthesized findings demonstrate that people with intellectual disability, who live in community or residential settings, may fall more frequently, and at a younger age
This study describes how an informed consent process was developed for people with intellectual disability and how it is working in a current study
The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.
Principal Research Fellow
Our vision is to increase awareness and improve outcomes for children with movement disorders and other neurodevelopmental conditions impacting on motor function.
We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.
While individual diseases are rare, as a group, rare diseases are common. Recent estimates suggest that between 3% and 6% of the world’s population are affected by rare disease.
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
Mothers of children with autism spectrum disorder or intellectual disability have higher rates of treatment episodes for psychiatric disorders