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Participate in our CDKL5 research to help advance research outcomes in the CDKL5 research field by our children's health specialist researchers.

News & Events
HBF Run for a Reason 2013What a fabulous day we had on Sunday at the HBF Run for a Reason in Perth, where Rett syndrome was extremely well represented!

News & Events
8th World Congress on Rett syndromeThank you to all guests and participants of this year's 8th World Congress on Rett syndrome, which was held from May 13-17th, 2016 in Kazan, Russia.
The mental health of Australian children and adolescents
Parents and carers were asked about the quality of services, need for services and whether their children received the needed service, as well as barriers.
A comparison between the first and second national surveys of youth mental health
Help us discover a way to expand protection for the next generation.

The Healthy Skin team, in collaboration with Elder Researchers and Aboriginal Community Members, is working to strengthen sun safety knowledge, practices, and skin cancer risk awareness among Aboriginal children and young people in Western Australia.
ATOMIC Ears Study The ATOMIC Ears Study aims to evaluate a new treatment designed to prevent ongoing ear infections in kids having grommet surgery.
Research
ESM-Q: A consensus-based quality assessment tool for experience sampling method itemsThe experience sampling method (ESM) is increasingly used by researchers from various disciplines to answer novel questions about individuals’ daily lives. Measurement best practices have long been overlooked in ESM research, and recent reviews show that item quality is often not reported in ESM studies. The absence of information about item quality may be partly explained by the lack of consensus on how ESM item quality should be evaluated.