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The Adventurers - Fighting the war on childhood cancer

Elliot's life was stolen by brain cancer when he was only 4 years old, so his parents channeled their sorrow by setting up the Telethon Adventurers. Read more.

A tight circle of support - the family and friends of Ethan Davies

The Ethan Davies Scholarship is a community fundraising campaign started by Christie-Lee & Shannon Davies after their son Ethan was diagnosed with brain cancer

Onwards and upwards

Making FASD History inspires the rest of the world to follow suit.

Partnership with BHP proves a game changer for the Institute

What does BHP know about medical research? More than you might imagine!

AussieRett

The Australian Rett Syndrome Study is based at The Kids Research Institute Australia located in Subiaco, Western Australia. This study was established in 1993.

InterRett

Funded by the International Rett Syndrome Foundation, this international online database examines the clinical features and genetic characteristics.

The CDKL5 Disorder

One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.

Areas of research

With the help of clinicians and families who have children with Rett syndrome, our research aims to improve understanding of Rett syndrome.

Investigating genotype - phenotype relationships in Rett syndrome using an international database

This study used information from international Rett syndrome database to investigate the relationship between clinical characteristics and different mutations.