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Participate in our CDKL5 research to help advance research outcomes in the CDKL5 research field by our children's health specialist researchers.

Discover the news and events of the Rett syndrome and related disorders team, and find out what the team is working on in the fields of children disorders.

What a fabulous day we had on Sunday at the HBF Run for a Reason in Perth, where Rett syndrome was extremely well represented!

Following last year's World Rett Syndrome Congress held in New Orleans, the 3rd European Rett Syndrome Conference was held in the Netherlands over 3 days.

On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.

You can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.

Our InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.

Thank you to all guests and participants of this year's 8th World Congress on Rett syndrome, which was held from May 13-17th, 2016 in Kazan, Russia.

Our own Dr Helen Leonard was recently featured on Today Tonight. MECP2 duplication syndrome, which more frequently affects boys, is one of the Rett syndrome...

Our AussieRett team recently visited Melbourne, Australia for the IASSIDD 15th World Congress.