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We wanted to explore the quality of life of mothers of children with autism and intellectual disability and identify factors that impact their quality of life.
We examined risk of intellectual disability and other neuropsychiatric outcomes in children of mothers with and without schizophrenia, bipolar or depression.
The purpose of this review was to describe literature relating to transition for young people with an intellectual disability and identify knowledge base gaps.
The aim of this study was to examine the association between maternal alcohol use disorder and intellectual disability in children.
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.
While individual diseases are rare, as a group, rare diseases are common. Recent estimates suggest that between 3% and 6% of the world’s population are affected by rare disease.
Our vision is to increase awareness and improve outcomes for children with movement disorders and other neurodevelopmental conditions impacting on motor function.
We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.
The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.