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ACCARE provides high level advice to the Institute's Director around strategic directions and operational elements relating to Aboriginal health research
Research
GAMA projectThis study investigated host gene expression in response to new HIV infection.
A comprehensive app produced by The Kids researchers has offered parents a lifeline as they try to cope with the isolation and disruption caused by coronavirus.
Autism researchers at The Kids have led the most comprehensive review of the evidence for autism intervention ever compiled
A legal change fought for by The Kids, consumer advocates, and others within the health sector – and hastened by the COVID-19 crisis – has brought WA into line with the rest of Australia, allowing critically ill or incapacitated patients access to potentially life-saving clinical trials.
For children with Austin Spectrum Disorder (ASD), it can be hard to enjoy the simple pleasures of art, but the development of an ASD guide is helping to share the wonders of art with all.
A child can’t thrive if they don’t have a roof over their head.
Research
Beyond Seizures as an Outcome Measure: A Global Severity Scoring System for CDKL5 Deficiency DisorderCDKL5 deficiency disorder (CDD) is a rare developmental and epileptic encephalopathy (DEE) associated with multiple impairments and comorbidities. Outcome measures for disease-modifying clinical trials for DEEs should measurably capture a spectrum of caregiver priorities and be externally validated.
Research
Psychometric validation of the quality of life Inventory − Disability (QI-Disability) among patients with Lennox-Gastaut syndrome and Dravet syndromeTo evaluate the psychometric properties of the Quality of Life Inventory -Disability (QI-Disability) for individuals with Dravet syndrome (DS) or Lennox-Gastaut syndrome (LGS), two rare developmental and epileptic encephalopathy conditions.
Research
A meta-analytic review and conceptual model of the antecedents and outcomes of goal adjustment in response to striving difficultiesThere is growing interest in how and why individuals adjust their goals in response to difficulties encountered during goal striving and the outcomes of such adjustments; however, research on these topics is fragmented across theoretical perspectives and life domains.