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We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.
News & Events
HBF Run for a Reason 2014On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.
News & Events
"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndromeYou can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.
News & Events
The Rett Syndrome Journey: Pathways to FollowOur InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.
Research
Non-specific psychological distress, smoking status and smoking cessation: United States National Health Interview Survey 2005It is well established that smoking rates in people with common mental disorders such as anxiety or depressive disorders are much higher than in people...
Research
Longitudinal hand function in Rett syndromeLoss of hand function is a core feature of Rett syndrome. This article describes longitudinal hand function at 3 time points for 72 subjects participating...
Research
Dietary intake of omega-3 fatty acids and risk of depressive symptoms in adolescentsPrevious randomized controlled trials have demonstrated that omega-3 polyunsaturated fatty acids (n-3 PUFA) are beneficial in reducing symptoms of depression.
Research
Reactogenicity of two 2010 trivalent inactivated influenza vaccine formulations in adultsThe objective of this tudy was to assess the reactogenicity of two 2010 trivalent inactivated influenza vaccine (TIV) formulations among adults, including...
Research
Influence of secular trends and sample size on reference equations for lung function testsThe aim of our study was to determine the contribution of secular trends and sample size to lung function reference equations, and establish the number...