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News & Events

Keeping your kids moving during WA’s hard lockdown

Western Australia’s sudden hard lockdown came without warning and unlike when COVID-19 first kept us at home last year, there are now rules on how long we can spend exercising outside.

News & Events

Back to school anxiety: How to help your child transition into the new school year

It is natural for children to feel anxious about what a new school year will bring. Here's how to help make the first days and weeks easier on your child and the whole family.

News & Events

Parent of a year 7 student? Why now is the best time to talk to your child about drinking

Year 7 is a time of big change and challenges - and it's also the best time to start talking about alcohol.

About

Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.

Behavior and mutation type

We also wanted to find out whether any particular behaviours were associated with any specific mutation types.

A validation study of a modified Bouchard activity record

We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.

Physical and mental health of mothers caring for a child with Rett syndrome

We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.

Family satisfaction following spinal fusion in Rett syndrome: a cohort study

This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.

ActiveRett

Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.

How much activity is recommended?

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.