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Effect of Posture on Lung Ventilation distribution and Associations with Structure in Children with Cystic Fibrosis

Effect of Posture on Lung Ventilation distribution and Associations with Structure in Children with Cystic Fibrosis Effect of Posture on Lung

Interleukin-1 is associated with inflammation and structural lung disease in young children with cystic fibrosis

Interleukin-1 is associated with inflammation and structural lung disease in young children with cystic fibrosis Early diagnosis and treatment in

Annual Giving

Your generosity creates a significant impact on our research and on the lives of children everywhere

A tight circle of support - the family and friends of Ethan Davies

The Ethan Davies Scholarship is a community fundraising campaign started by Christie-Lee & Shannon Davies after their son Ethan was diagnosed with brain cancer

The Adventurers - Fighting the war on childhood cancer

Elliot's life was stolen by brain cancer when he was only 4 years old, so his parents channeled their sorrow by setting up the Telethon Adventurers. Read more.

Meet the team

Meet the team behind the Beacon app.

Research

An expanded phenotype centric benchmark of variant prioritisation tools

Identifying the causal variant for diagnosis of genetic diseases is challenging when using next-generation sequencing approaches and variant prioritization tools can assist in this task. These tools provide in silico predictions of variant pathogenicity, however they are agnostic to the disease under study. We previously performed a disease-specific benchmark of 24 such tools to assess how they perform in different disease contexts.

Research

Primum non nocere (“first do no harm”) with oxygen therapy

Britta Regli-von Ungern-Sternberg AM FAHMS MD, PhD, DEAA, FANZA Chair of Paediatric anaesthesia, University of Western Australia; Consultant

Research

In silico evolution of nucleic acid-binding proteins from a nonfunctional scaffold

Directed evolution emulates the process of natural selection to produce proteins with improved or altered functions. These approaches have proven to be very powerful but are technically challenging and particularly time and resource intensive. To bypass these limitations, we constructed a system to perform the entire process of directed evolution in silico.

Research

Pathogenic variants in RNPC3 are associated with hypopituitarism and primary ovarian insufficiency

We aimed to investigate the molecular basis underlying a novel phenotype including hypopituitarism associated with primary ovarian insufficiency.