The list of The Siblings Project publications
Appropriate support for the health of children with an intellectual disability by parents and healthcare professionals is pivotal, given the high ris…
Siblings of individuals with neurodevelopmental conditions (NDCs) are at increased genetic and environmental risk for poorer psychosocial and neuroco…
To evaluate the associations between complex hip surgery and subsequent hospitalizations in children with intellectual disability, including a subset…
To describe the timing and causes of post-neonatally acquired cerebral palsy (PNN-CP) and map the implementation of relevant preventive strategies ag…
Increasingly, preterm-born children are entering adulthood as survival at earlier gestational ages improves. However, there is little understanding o…
Assisted reproductive technology (ART) pregnancies are at greater risk of birth defects than non-ART pregnancies. Teratogenic medication exposure is…
The clinical, research and advocacy communities for Rett syndrome are striving to achieve clinical trial readiness, including having fit-for-purpose…
Information on the hospital service use among individuals with CDKL5 Deficiency Disorder, an ultrarare developmental epileptic encephalopathy, is lim…
The studies this project has conducted